Tag Archives: stress

The Forgotten

My father served in Vietnam in the late 1960s. When he came home, he was spit on and called a baby killer. He was one of too many. Everyone hated him and everyone that put that uniform on. That was a horrible time for our military.

As our country engages more and more across the world, spreading our military might too thin, their overall support dwindles. I watched as everyone wore their American Pride well during the First Gulf war in 1989. But the political landscape capped that quite well – “It’s all about the oil.” Everyone listens to the media.

And then one horrible day that has spread across the world, 9/11 ripped through our lives, everyone’s lives. And our national pride soared once more. For a while, anyway. And then everyone started listening to the media again. The spun any part of “The War on Terror” as a waste of money, Bush’s War, the daily death count. I was confused when the new phrases came out – “Where’s the weapons of Mass destruction?” No one could think that a plane would be a weapon of mass destruction, or bio-weapons. All they cared about was seeing the nukes. Where were the nukes? Unfortunately, we gave them plenty of time to get those out of their country. And when we couldn’t produce a cache of weapons that the media wanted and the fact that we weren’t getting out of there any time soon, the phrase changed to,  “Support our troops, but not the war.” How can you support that which engages in the thing you don’t like? It was a complete conundrum for me that still leaves me scratching my head. Just ugh.

Why do we continue to hate on our military?

According to a report released in March 2016 by the National Center for Veterans Analysis and Statistics, the greatest number of Veterans still comes from the Vietnam Era, closely followed by  peacetime only Veterans and then The First Gulf War. Yet, everyone focuses their attention, and money, on those Post-911 veterans, which only account for 13% of the total number of Veterans in that census.

Thirteen.

And yet, they are the ones who receive the attention, the focus, the help. They are the ones that all the charities gear their marketing efforts towards. In 2014, there were 19.3 million veterans living in the US and PR. Of those 19.3 million veterans, only 3.8 million have been awarded a service connected disability. Other statistics include: 7 million served in Vietnam, 5.5 million served during the Gulf War era (representing service from August 1990 to present), and 2.5 million served in Iraq and Afghanistan.

Now, when I say that 2.5 million served in Iraq and Afghanistan, I’m sure that is an accurate number in the sense that there were 2.5 million people deployed to those areas. However, it is a well-known fact that of those 2.5 million people quite a lot have been on multiple deployments. So, in essence, there aren’t 2.5 million veterans of those two wars. The RAND Association explains it best –  in troop years, rather than number of deployed. At present, I have been unable to locate the exact number of Iraq and Iran Veterans. However, RAND is stating the strength of approximately 554,000 soldiers in December 2011. The VA is reporting that it has seen approximately 860,000 Iraq and Afghanistan veterans utilizing their Health System.

As the US Veteran population ages, the older generation numbers will dwindle. This is only natural. But with our continuing efforts in Iraq and Afghanistan, the number of veterans from these two areas will undoubtedly surpass the Vietnam era.

I am in no way trying to downplay the younger generation of veterans. By no means. What I am trying to point out is that Every Veteran Matters. 

And that’s how ALL these benefits/charities SHOULD be run. But they’re not.

I lived through my husband’s combat deployment. He experienced it. Still experiences it. Every. Horrible. Moment. And how many people remember Kosovo and their atrocities?

Only those who went there in the beginning.

So why is it that only the latest veterans, those post-911 combat veterans, are the only ones to get any benefits, any assistance, anything from anyone?

We are not ones to ask for assistance or help. We are those people who would offer up our help to others, no matter how bad off we were. But this last year has put us in a bind. With my medical insurance premiums and cost going up, the services and prescriptions covered going down, we’ve pretty much wiped out our savings. The VA hasn’t paid for any of the procedures he’s gone through since they stopped working back in 2012 or so. I can’t remember the last time he went. They don’t pay for any of his pain medications. So we are forced, now, to go seek civilian help.

He’s been going to a civilian neurologist since we moved to Florida and he’s been doing Botox injections in his neck and shoulders for his dystonia. For the past two years, all we had to pay for was the doctor visit for this procedure. Now, we have to pay for the Botox and the doctor visit. At $1000 every 3 months, that’s a no go. So he hasn’t had this since October of 2015. His pain is ever-increasing.

I did some digging and found out that now the VA Pain Center can do the Botox injections for him. I also want him to try ketamine infusions, as it’s helped a couple of people with their chronic pain that no pain medications have been able to touch.

In January 2016, I called for a VA neurology consultation so he could possibly be seen for both Botox injections and get a referral for the ketamine infusions. February 3, 2016 was his appointment and the VA neurologist evaluated him and said he’d refer him over to the VA Pain Center where they do the treatments. March rolls by and so does April. OK, we knew we’d have to wait, but I had him call and check anyway. Come to find out, February 4, 2016 another neurologist revoked his referral due to “having a civilian neurologist and received Botox there.”

Um, no! Just no!

So he had to fight to get that referral reinstated and he had his fist consult with the VA Pain Center in May 2016. Despite having previously been seen there, with quite a few procedures that eventually failed, and records to show for it, the evaluating “doctor” decides to “try” a procedure he had, that failed, twice, since he hadn’t been there in several years. He kept trying to say it was “new” when it really was the exact same procedure he’s had there before. We are convinced he was fishing to get TheHubs to say, “no, I don’t want to do that” just so the VA could deny him benefits because he refused a recommended treatment. But TheHubs suffered through this treatment in June 2016, which seems to have made his pain worse. They have scheduled his Botox injections for the end of October 2016 (a full year without Botox, so it’s like starting completely from scratch.) And to top it off, they can only inject HALF of what he was getting in the civilian world. HALF! How the heck is that even going to help when his full dose only took the edge off the pain!?

Not only do we have to deal with all his VA and civilian doctors, TheBoy had to have surgery on both his feet last year. Now he’s in braces, which we are still paying on. And, of course, my medical issues. And last month, our A/C died. At 95 degrees, in Florida, you don’t want your A/C to die. I had just emptied out our savings to pay off all the medical bills and then this happened. Everyone in my support groups were great, giving me places to apply for assistance, in the hopes that someone, somewhere could help me with the payment of a brand new A/C handler and compressor.

That’s when I found just how frustrated and forgotten TheHubs REALLY feels…

Out of about 35 organizations I tried, only 2 were open to all eras. But both of them were out of money. Everywhere else, you had to be a post-911 combat wounded veteran. I was crushed. All the charities I see out there, helping people with all kinds of needs and assistance, and we don’t qualify. Just like the VA Caregiver Program or any of the “automatic benefits” these veterans get without having to fight for their compensation Retreats, discounts, even a day at an amusement park (even *if* he could go with all those people) are not an option for him. Heck, even just a simple tool box for veterans, and we were denied.

Nope, we have to fight tooth and nail for everything he deserves. He has always called it “The Forgotten War.” I understood it. But now, I am seeing it as “The Forgotten Veterans,” too. It breaks my heart. And what about my dad? He had to wait 30 years before the government would even acknowledge the fact that they used Agent Orange. Luckily, now they have automatic diagnosis that fall into the Agent Orange category. But, really, any assistance that my mom might need, like the Caregiver Program, is lost to her as well.

I just can’t believe that we are a NATION OF NOW, a reactionary force to whatever happens to be in your face at the moment. And since the Iraq and Afghanistan wars are still ongoing, because the returning and broken veterans are so young and so plentiful, more people see them, see their wounds, and want to help…them.

I want to know where we can go for ALL era veterans. I want to know why we continue to discriminate and forget about those that came before. I want to know why we can’t recognize and help them too! This is only a small portion that adds to the 22 veterans a day that die by their own hands. I only hope I can keep his hope from fading!

LadyJai

 

 

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VA Appeal Update

VA Appeal Update #2

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VA Appeal Update #4

VA Appeal Update #5
VA Appeal Update #6

PTSD, TBI, Sex and Relationships

After 26 years of marriage, we’ve only just now started opening up more, having conversations about these very topics. I have not been able to put them into words yet. I am still processing. But this….this post explains it all. I will return here and re-read and re-read until I can understand it better. I don’t think I can fully understand what goes on in his mind. I don’t think he ever wants me to, either. But this blog post helps me tremendously. I do hope it helps you too.

Life After War

You came back different. Changed. You can’t really describe  it, but you’re not yourself. Not who you used to be. You’re angry. Blow up at stupid shit. Lack other emotions. Feel numb. Tired. Disinterested in stuff that used to be interesting. Tense. Sleepless. Have nightmares that scare the hell out of you. Forget shit. Can’t focus. You miss your buddies. Miss the war. Miss the ones you lost. Miss feeling like you used to feel. Before.

He came home. Different. Instead of you being able to step back and let him take over sharing the household, childcare and financial responsibilities, you have to take care of him now, too. He’s angry. Silent, except when he’s mad. He can’t remember shit. Seems unmotivated. And distant. He’s up all night; keeps you up all night. Spends more time on the sofa than in bed. Keeps loaded guns around the house. Is edgy…

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Positives For Last Week – #CelebrateTheSmallThings – 5 February 2016

I’m a bit late posting my Celebrate the Small Things. But the positive is, I’m posting now! 🙂

Obligatory VA selfie!

Obligatory VA selfie!

POSITIVES FOR THIS WEEK:
1) My Hope Bucket for “something to work” for TheHubs has been refilled. I have to remember it’s the VA we are talking about so that Hope Bucket needs to have a filter on it so I don’t let it run away on me.
2) After dealing with the many ID-10-Ts on the road on Friday, we saw a RANDOM ACT OF COMMON SENSE while pulling into Taco Bell so we bought the guys lunch.
3) Took Ms. Rose (the older lady I helped after an accident back in December) to the store and bank since she hasn’t gotten a new car yet. I feel bad for her. She’s always telling me she wishes I were her daughter. She buys me things when I tell her not to. I feel awkward with her, but it’s a good thing to help her out. But I’m still always awkward.

What are you celebrating this week? 

Thank you to our lovely host, Lexa Cain for taking over and continuing the Celebrate the Small Things blog hop. I would also like to thank her co-hosts, L.G. Keltner @ Writing Off The Edge and Katie @ TheCyborgMom – without them, I’m sure this would be a daunting task!

To be part of this blog hop, all you have to do is put your name on the linky list on Lexa’s Blog, and then post every Friday about something you’re grateful  for that week.  It can be about writing or family or school or general life.  This is the funnest and easiest blog hop ever! (Originated by VikLit)

LadyJai

Related Articles you may like:
Goals for 2016
Been A While – Celebrate the Small Things
Pain – Celebrate the Small Things

Where Did the Magical Season Go?

So, can this day/week/season hurry up and be over with already?

Every year I hide behind my words – <Insert Holiday Title Here> is nothing but a commercialized guilt trip and we should celebrate love, kindness, thankfulness, gratefulness, family, friends, and whatever else, EVERY day.

Yeah, just words. Sort of.

In all honesty, I have always disliked many holidays. I dislike Valentines Day, Mother’s Day, Father’s Day, Grandparents day, Boss’s Day, Administrative Assistance Day, and any other day you can think of. The truth of it all is, it’s a holiday that people adopt so they can party (like St. Patrick’s Day, or Cinco De Mayo), or it’s a day that all the retailers try to lure you in with “savings” to get your money or guilt trip you into buying something for your love or your child and if you don’t, you suck.

And it seems to be worse around Christmas.

My heart and soul must live in a different time period, especially around Christmas time.  The magic of the season is everything to me. You know what I mean. Old movies like HOLIDAY INN or WHITE CHRISTMAS, or the kind you see in a Thomas Kinkade painting, and all the stories of miracles happening around Christmas. A quaint little neighborhood. A blanket of virgin snow. A single trail down the center of the road that leads to the horse-drawn carriage. Christmas lights and decorations lining the streets and warming the houses. Everyone smiling and wishing passersby a Merry Christmas, helping those who needed help, and giving a small gift of friendship in any form. Friends and family circling round the fireplace drinking hot apple cider, singing Christmas carols, and sharing in the warmth of the love. Every time a bell rings, an angel gets its wings.

Oh to see the world through my childhood eyes again.

To set the record straight, It’s not just about the lack of presents. With all due respect, presents under the tree is only a tiny part of that ideal Christmas image in my head. With each passing year, though, the magic of the holiday seasons grows more distant and unattainable. Decorations, still packed away in boxes stored in the garage, are left untouched for years. The lack of cold and snow, does nothing to put me in the mood either. I have no motivation. And when I do, I do it all alone. And now, while the desire is there, that little voice inside my head says, “what’s the point?”

I no longer like going out window shopping, just to enjoy the decorations or looking for ideas for my own house. There are way too many people. It would be ok if everyone was happy it was Christmas time. But now, everyone is so rude, and a thousand times worse during this season. It spurs anxiety in both TheHubs and I.

PTSD and Pain have ruined this time of year for me. TheHubs only feels 3 emotions: rage, despair, and nothing. He doesn’t get into decorating, socializing, or celebrating anymore. This, in turn, makes me not want to put in the effort. Maybe it’s the lack of UV light, the drab days, the lack of color all around, that adds to the depressive state. They do talk a lot about this time of year being worse for depression. So maybe that’s part of it. But I also know that seeing your loved one in constant pain, suffering his demons, and hardly ever seeing the smile on his lips and twinkle in his eye, well, you just let it slip through and wish it were all over so you can get back to the everyday life without seeing everyone else’s Christmas cheer.

This year has been especially hard, making this holiday season a bit worse for wear.  We’ve been through some seriously trying times. Communication is the only way to get through it. And while the PTSD Rage Monster flares bright, I wondered if we’d ever get back to that point. But we did. We both opened up. We both are constantly working on our communication. But while you’re smack in the midst of living the hell, it is hard to see the light. There were several of these times throughout the year. More than we’ve had in a very, very long time.

And then there were all the medical issues.

For me, luckily, this year was pretty simple. Just a few follow-ups with my Psychiatrist and adjustments to my meds–which at this time, I am not going to up them because of the price. It’s like two completely different prescriptions, even though it’s the same medication. One strength dose in the morning, a different one in the evening. But, it’s on a higher tier in the formulary so I have to fork out a bit of money for that. (And don’t even get me started on next year’s medical insurance.)

When TheBoy started school this year, he also started complaining about his feet hurting. It wasn’t until about a week in that it got so bad he called us from the nurses office saying he couldn’t walk anymore. We took him to a podiatrist and that’s when we found out he has incredibly flat feet (like his father) and loose tendons (like his mother). Luckily, the doctor had a quick and permanent fix, giving him an arch and correcting his feet to hopefully not have pain. It would require surgery on both feet. And now was the best time for him to have it since he’s still growing. He’s already had one surgery, and his second is on Dec 8th. (if you want to read about this condition, you can see the pictures here)

And then we found out he needed braces. UGH!

On top of all this, we also have to foot the bill for what the VA doesn’t cover for TheHubs. All his medications, and the neurologist he’s been seeing for a little over 10 years. His Botox injections, and pain medications. He also had surgery in September to help correct his severely deviated septum, which was supposed to help his apnea and we were hoping to alleviate the positional pain that came from sleeping since he would now be able to breath out of his nose while sleeping on his belly. It helped somewhat, but nothing to write home about.

So, our bank account has been pretty much wiped out — of course adding to my already discouragement for this season.

So when TheBoy comes to me, without prompting, and says he would be fine with nothing for his birthday and Christmas, an instant surge of pride is quickly replaced with a great sadness because I know with all these medical and dental bills that are going on I cannot afford to get him something, or anyone else either.

This season is about giving. And I do so love to give, whether it be a present, a smile, a hug, a positive thought. I am happiest when I am giving and helping people. I am happy making others happy. Sometimes, though, I would love if everyone else felt the same way I do.

When I started writing this post, it was so very negative. I couldn’t see the positive, and wondered if I would ever feel any Christmas spirit again. After getting it out, admitting it, I realize that just like being positive in everyday life, being happy on Christmas is a conscious decision. So today, I am making that decision – the decision to try to enjoy the season and not focus on my dreams.

I am going to try to make other people happy. Maybe it will help me get back into the spirit of the season. If I can buy someone’s coffee while I’m out shopping, or find a homeless vet who hangs out on the corner near the mall and give them $20. Or get back to leaving my Positive Post-It Notes around town while we are out and about…*IF* we are out and about. I really want to be able to share the positive and the happy and give someone a smile. The more people who see kindness, maybe it will spread and the rudeness will diminish?

I honestly believe in karma and “what goes around comes around”. I just have to be patient. And patience is not my best quality.

One can only hope, though.

So I am going to ask you to do the same. Maybe it might help you too. Be kind to everyone. You never know what their story is.

Be kind. Smile often. And spread the happiness.

LadyJai

If you’re willing, I would love to hear your stories as well. Let us all feel not so alone, especially during this holiday season so we can have a little bit of light in the PTSD darkness. Love you all.

Related Articles you may like:
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Christmas 2014
The Secret to Marriage
Finding the Positives

Present – Part2

In April, I wrote about being present. While I still struggle with the need to fix and make him happy, I am also seeing just how much being there has been a great help to him. It’s a constant struggle. But always, I must remember that single, solitary word when it comes to him…
PRESENT

Last week, I had a very big eye opener. It was quite coincidental when an 18-year-old Australian Model’s story went viral. I was very moved by this article. She had an epiphany and spoke the truth about how she lost herself in social media, how it consumed her identity, and made her so unhappy. It also woke me up to my own problems with social media. But this was only the beginning. My friend, Cheyenne, also posted her response to the model’s article. Like I said, it was coincidental because that same week, TheHubs came to me about how much time I spend on social media and how he feels neglected because of it.

I had to re-evaluate the time I spend on social media.

Because I am a caregiver, I don’t have the luxury of in-real-life friends. My friends live in my computer/phone. It is my connection to others outside of work and my home. I really don’t have friends that I hang out with. Sure I have a few friends at work. But our external interaction is null. So I rely on social media to keep up-to-date and in contact with my friends online. Over the years, we’ve lost all our friends due to his chronic pain, migraines, PTSD, and anxiety. He used to be our friend-maker. I’ve had to learn how. But, since no one understands our situation, his pain, his anxiety and PTSD, well, people only accept so many nos until they stop trying. So, I rely heavily on social media to have friendships.

Being present isn’t just about being physically there for him. It also means being there mentally. Ever since I got a new position at work that requires more responsibility, I’ve not had any down time where I could actually take a break, let alone eat lunch on time, so my social presence has been null while I worked. On one hand, this is good because I am not bored and I am doing my job, despite the drama that stems from those I work with now. On the other, though, I catch up on social media when I get home, I’ve neglected my writing, and now, I find out that he feels neglected, too.

So when we had our discussion about how much time I have my nose in my phone and not paying him attention and after I read that article about the model’s change of heart, and then my friend’s response to it, I knew I needed to take a time out.

It’s been hard to keep that phone off while I sit back and watch something TheHubs loves but I just don’t. It’s hard not to pick up the phone every few minutes to see what has been posted recently on Facebook or Twitter. I’m not 100% there yet, but I think I am doing better. I NEED to do better, for him. I need to be present, in every way possible. Because, when we stop being present, their hope fades, their demons rise, and they start listening to them again.

I’m not gone. I’m just a little less here. 😛
I hope you can remember all this, too.
Be kind to yourself so you can be kind to others.

Related Articles you may like:
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My poem about depression and hope, entitled Pieces

LadyJai

Been A While – #CelebrateTheSmallThings – 23 Oct 2015

I love finding all the beauty and positives despite the tempest that is our lives. ‪#‎bepositive‬

It’s been a while…too long, since I’ve been here to update my blog.
I miss it. Terribly.

You see, sometimes, life gets in the way of the things you want to do. For caregivers, though, that seems to happen a lot more often than not.

These last three months for me have been extremely stressful. My position at work was taken away because it was no longer needed. So they found me a new position. I had to learn the job and then, because I am a fixer, I am now finding processes that will make everything work smoother. However, the push-back I am getting, or rather, the lack of any movement has been causing me undue stress. I’ve brought all my concerns up to my team lead, but I feel as though I am receiving lip service. Nothing has changed.

Not only that, but I have been introduced to “man drama.” I did not know men could be worse than the women I’ve seen in my lifetime. Oh boy. So add that to the stress.

And then, there’s TheHubs’ pain levels. He went back in for his Botox treatment for his neck muscles that are in constant lock up. However, we’ve been noticing that there are different muscle groups that lock up each time he has the procedure done. He asked for more this last time. His neurologist told him that he’s at the maximum allowable dosage for the Botox injections. If he were to receive more, or more frequently, then he could build up anti-bodies which will then make him more tolerant to its effects. But, they did work out that rather than giving him the injections in the same locations every time, the doctor will only put the injections in the muscles that are locked up from now on. So we shall see how that will go.

TheBoy started school mid-August. A week later he began complaining that his feet hurt. A week later, he couldn’t walk without pain. We took him in, had x-rays and found that he had extremely flat feet and very loose ligaments. He had been in braces on both feet since. Last Friday, he had surgery on one foot. It is an amazing procedure, I never knew existed!

flatfoot_optionBasically, there is a small piece of metal, much in the shape of a bullet with grooves along the side, that is inserted in between the hollow space in the ankle where it nestles in and prevents the overpronation problem, giving him a sturdy ankle and an actual arch.

This is basically what the before and after will look like for TheBoy

MBAsurg5 podchildren

So, what little things am I celebrating?

  • I’m happy the surgery went well, that he’s in very little pain, and that this first surgery is over.
  • Well, let’s see. There’s the fact that I had a hard time letting go of something. It had me in tears nearly every day because I just couldn’t understand the reason why it happened. I am celebrating the fact that I am no longer in the grieving stage of this loss. I have moved on to the acceptance stage. Am I still sad, yes. But it no longer holds a grip on me.
  • I am also celebrating that I stepped out of my comfort zone. I am horrible at confrontation. I avoid it at all cost. Well, work was costing me my health. I had to do something. So, I actually took it to my lead, and let him know how I felt in this new position and how the “team” was not a team. Now that I got it out in the open, I’ve been watching. And, honestly, I didn’t think anything would change. But I spoke my mind. It’s been a month now, and my next step is going to my manager. I have been documenting everything. I really hate doing this, but it’s affecting not just me, but the entire team, plus a one more team that we interact with very much.
  • I’m celebrating my work from home week. A week I get to spend at home to help take care of TheBoy after his surgery, as well as work. Another reason my stress seems to have lessened.
  • And, last but not least, I am celebrating that I have managed to lower my resting heartbeat from an average of 90 bpm to 69 bpm, just by lowering my stress levels.

What are you celebrating this week? 

Thank you to our lovely host, Lexa Cain for taking over and continuing the Celebrate the Small Things blog hop. I would also like to thank her co-hosts, L.G. Keltner @ Writing Off The Edge and Katie @ TheCyborgMom – without them, I’m sure this would be a daunting task!

To be part of this blog hop, all you have to do is put your name on the linky list on Lexa’s Blog, and then post every Friday about something you’re grateful  for that week.  It can be about writing or family or school or general life.  This is the funnest and easiest blog hop ever! (Originated by VikLit)

LadyJai

Related Articles you may like:

Sharing Memories – #CelebrateTheSmallThings – 19 June 2015
The Secret to Marriage
You Are Not Alone!

No Longer Supporting the Bully Supporter

NEVER BE BULLIED

I wrote a guest post on one of the Support Group blogs that went live on July 22nd. I am now wishing that I never wrote it. Or at the very least, never agreed to having them post it, because really, that whole love and loyalty to my support group that I spoke about in it, the whole finding light in the darkness and a home, has been shattered beyond repair.

It all started coming to a head on July 26th when one of the moderators was let go from the parent company (PC), without warning, without any notice. PC turned our little group completely upside down. It was handled very badly in my opinion. A person who never participates in the group, is not part of our family, swoops in and basically says “trust us it’s for the best” but fails to give any explanation or even forewarning. Trust is not automatic. It’s earned. And for someone to come in and say that, how can you expect us to just say “ok” and go on with our lives? Really? In a caregiver support group, where change is really NOT ok. We have to plan. Our whole lives get upset when change, especially drastic change, upsets the balance we so carefully curate.

We, the group members, spent the remainder of the day and night trying to process it all and get PC to understand that how they handled this situation was incredibly bad. While our words to them seemed to have fallen on deaf ears, and probably nothing will be done to get our mod back, SHE KNOWS we love her and fought for her. SHE KNOWS the truth of it all and SHE KNOWS that we can see through the tip-toeing around, the changing stories, and the excuses.

That incident tore my loyalty in two. While I loved my support group family and those who started it, how can I remain loyal to the parent company who disrupted our family and refuses to speak the truth or acknowledge the fact that they handled the situation very, very wrong?

There have been other incidents prior to this that the majority overlooked. A particular individual would be nice one minute and rage and lash out at someone the next. I have been on the receiving end of that rage several times. While I do my best to remain calm and nice in my replies, the line was crossed several times. I eventually stopped responding. But sometimes the moderator had to step in because I am trying to change my self-image. I am trying to stand up for myself and not let people walk all over me. I am trying to face my fear of confrontation. I do remember one time, though, she crossed the line so far that I ended up stooping to her level and I regret that. After that incident, I blocked her for a while. It was nice and peaceful. But being the type of person I am, who thrives on helping other people, I unblocked her and just watched. I watched her go from nice to snapping people’s heads off in a matter of seconds and nothing ever got done about it.

We were a support group to help others deal with caring for their veterans. When this individual first started her seemingly random attacks at people in our group, I asked the moderator if anything could be done. They said they handled it behind the scenes. But she was allowed to remain. Her attacks still came. One day, one moment, she would be nice and sweet and generally want the help or give help. The next day or moment she’d flip. I get that she may have her own issues. I get that the loudest, most cruel person, could very possibly need the most help. But to attack the people who are trying to support you is NOT the way to go about it.

The moderators always asked for tolerance and acceptance. Well, Tolerance and acceptance works both ways. But apparently not many people see it that way. We ALL have done our best. All of the people who I have spoken with about this individual. We have all TRIED to be nice, accept her, offer a shoulder but what do we get in return? Snapped at, bullied, and abused. And from our perspective, the moderators continually took her side. In essence, they spit in the rest of the group’s face.

I stood up for myself and others in the group. I spoke what everyone else was thinking. I gave my honest opinion. MY PERSPECTIVE. And what do I get in return? For voicing my opinion on a subject, for voicing my perspective where the moderator asked and stated that there will be no judgement, no criticism, I felt both of those. I will not back down on my stance, nor will I give in. I will not stop fighting for MY FAMILY. To allow this toxicity to continue in the group, has made it unsafe for me, for anyone. I will no longer support the support group or the PC. I cannot tolerate bullies, in any form.

I was told that “Perspective isn’t truth.” I don’t see it that way. Perspective is truth to the one who perceives it. Truth is always relative. You have to be willing to see things from multiple angles. And I believe that this is what is wrong with today’s society. No one is willing to budge in their views on anything. Because I voiced my perspective, and it didn’t mesh with hers, then I was belittled, judged, and criticized. There was no compromise.

I WILL NOT BACK DOWN! That woman’s anger, her rage, and her cruelty poisoned our community, our family. And they allowed it to happen. Over. And. Over. And. Over. Again. We tolerated enough. I was not going to allow it any more. I wanted to save our community. To save our family and make it safe again. How can it be safe when someone bullies you in the group? When someone verbally abuses someone else in the group. I can’t stand by and watch that happen anymore. The group is no longer SAFE.

All I know is that I’m done. I’ve said everything I can say and they will not budge. They’ve hurt me to my core. My heart breaks because I really loved this group. Before I found this support group, I was utterly alone in the world. I did not think anyone would understand me and I went to a very dark place. When I found this group, I found Beth, I started understanding and things were getting better. I started helping people understand that what they were going through, living, and feeling, that they weren’t alone. No one should ever feel like I felt before this group.

I haven’t felt this hurt since right after my son was born and Iost yet another friend to some random reason. And I haven’t had a friend since. When I open my heart up again, this is what happens. Always. It has hurt my soul and trusting anyone new is going to be so hard again. I know I will come back to it. I always do. But right now I am grieving.

I am honest. I am true. I am loyal. And my greatest weakness is that I believe every one should be, too. I am thankful for the support group and the PC, to allow me to meet new people and connect, with people who truly understood me. I am thankful for that. But it has changed. for me at least. And I have to stand up for myself and not get walked all over any more.

I need a new home. If you can recommend one, please let me know. I cannot go this caregiver path alone again.I'm enoughLadyJai

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Pain – #CelebrateTheSmallThings – 31 July 2015

 

Pain.

It affects everyone differently.

For me, it always wears me down, makes me just want to curl up in my bed under the covers, cuddle with my pillows and kitties, and sleep until I don’t hurt anymore. I’ve only had a few bouts of pain that would wake me up in the middle of the night or keep me from sleeping altogether. I guess I’m one of the lucky ones.

Add to the normal stress of being a woman, working full-time, being a Mom and wife, being a caregiver has its own issues. One of my fellow veteran caregivers called it caregiver-itis. That’s when all the stress of doing everything manifests into physical symptoms. I’ve got it. Sure enough. But my doctor has labeled it – Fibromyalgia. And it is rearing its ugly head right about now. Every part of my being is hypersensitive at the moment. I’ve got stress and tension headaches and my neck is killing me. And I’m struggling to even have the energy to type all this. But that’s only the major things. There’s too many other things I could list.

Right now, I believe it has everything to do with my new position at work. I have a deep seeded fear of failing. But with therapy and learning more about myself, I’ve learned how to (hopefully) cope with this. I’ve been working this new position now for a week. I’ve actually started feeling a bit more comfortable in my new position and understanding what it is I am supposed to be doing, that isn’t getting done, and getting people to accept me and the process (which is like trying to get out of quicksand while you’re running) but it will get there. It IS getting there. It’s the first time I’ve felt good about a new job, where I am NOT afraid of failing (as much as I used to anyway). I did have a small slip back into my old ways on Monday, but I’m better now. Much better because I feel like I really am understanding. But because of all the stress, it’s caused all the pain to flare up and I am struggling to even have energy to type all this. I’ve handled this a whole lot better than I ever have. Even WITH the fibro flaring up, it’s something to celebrate.

As for TheHubs, though, he suffers insomnia on top of the pain. I’m sure not sleeping exacerbates the pain. It sure doesn’t help his depression and PTSD. Dealing with all this has left him in a rut. His insomnia has full on raged and I miss my husband. For the last two months he’s been unable to sleep, and when he does it’s more like he passes out from sheer exhaustion.

Most couples don’t think twice about sharing a bed. Heck, they probably take it for granted and maybe even complain about who hogs the covers. In our life, sharing a bed at the same time is something to be treasured. It always goes in cycles and we never know how long it’s going to last. There’s never any way to fix it, either. We just have to ride it out. But, oh, how I miss him.

This round, I think it’s been a couple of months already. He started out with the pain again. And then he had surgery on his nose. He’s a stomach sleeper so staying in the recliner would prevent him from hurting his nose. It’s been about 3 weeks since his surgery and now he’s back to the chronic pain and migraines, again. But last night, when he started falling asleep in his recliner, I got him upstairs and in the bed with me. I love it. When he’s not cycling insomnia, we cuddle for a bit and then roll over to go to sleep. I’m always too hot anymore to snuggle for long. When he is cycling the insomnia, though, he’s asleep in a matter of seconds. But before he takes that plunge, his feet touch mine in our own special snuggling way.

Even if he only slept for 4 hours, he still shared the bed with me. And that’s something to celebrate.

What are you celebrating this week? 

Thank you to our lovely host, Lexa Cain for taking over and continuing the Celebrate the Small Things blog hop. I would also like to thank her co-hosts, L.G. Keltner @ Writing Off The Edge and Katie @ TheCyborgMom – without them, I’m sure this would be a daunting task!

To be part of this blog hop, all you have to do is put your name on the linky list on Lexa’s Blog, and then post every Friday about something you’re grateful  for that week.  It can be about writing or family or school or general life.  This is the funnest and easiest blog hop ever! (Originated by VikLit)

LadyJai

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Sharing Memories – #CelebrateTheSmallThings – 19 June 2015
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Financials & A New Car – #CelebrateTheSmallThings – 10 July 2015

I don’t know if you are familiar with my Many Hats Series of posts. There is one in particular that I would like to reference, today, because it is the back story of what I am celebrating. If you have the opportunity, please read the Accountant story, so you can get a better understanding of just how elated I am today. How proud I am of both TheHubs and I. Especially TheHubs.

We spent a good 5 years paying down our debt. When we bought our house 4 years ago, our credit score was horrendous. Not sure how we managed a 5% interest rate, but I was thankful for it. Two years ago, we bought a brand new car and our credit score had increased dramatically. Our credit card debt was nearly paid off by then. Of course I was proud of everything we’ve accomplished, the fact that I was able to say no to my husband when it was an absolute must, the fact he didn’t buy stuff anyway. There have been a few slips along the way, but we managed and I made sure I reiterate every time it happens. Sometimes I still have to put it all down on paper to show him exactly how much he’s spent because of his memory issues. But he has made the most progress over these last 5 years and I am so very proud of him. I make sure I tell him.

We’ve been considering getting a new car for a while now. TheHubs didn’t get everything he wanted in the car we got, plus there have been some pretty major issues already with the 2013 model. When we took our car in to the dealer to get some warranty work done two days ago, we wanted to see what was available to us and see how much of a difference it would be to upgrade. When they ran our credit and came back with the report, my knees literally buckled and I had to sit down. I never thought I’d see those numbers associated with our names. Beyond ecstatic. That’s all I could come up with what I was feeling.

The salesman ran the finance numbers and payment options and we decided. Four hours after we dropped off our car at the service department we had a new 2016 model. Near identical to our existing car.

Say goodbye to Double-Oh TARDIS (right) and say hello to Double-Oh TARDIS 2.0 (left)!!!!

Double-Oh TARDIS

What are you celebrating this week? 

Thank you to our lovely host, Lexa Cain for taking over and continuing the Celebrate the Small Things blog hop. I would also like to thank her co-hosts, L.G. Keltner @ Writing Off The Edge and Katie @ TheCyborgMom – without them, I’m sure this would be a daunting task!

To be part of this blog hop, all you have to do is put your name on the linky list on Lexa’s Blog, and then post every Friday about something you’re grateful  for that week.  It can be about writing or family or school or general life.  This is the funnest and easiest blog hop ever! (Originated by VikLit)

LadyJai

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Accountant — The Many Hats Series
Sharing Memories – #CelebrateTheSmallThings – 12 June 2015
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AC, Working From Home & NO GLASSES! – #CelebrateTheSmallThings – 19 June 2015

 

This week, I am celebrating the fact that we have half-Internet at work. One network is up and operational. However, I have nothing to do, job-wise, on that network. The other network, the one I can actually do work on while I wait for work on the other, well, we’ve been having random outages for about a month or so. We switched ISPs for that network and they have been quibbling over the payment to the new place. My take on this is that our payment went to the old place. Another local site had this happen, too, and it took 6 weeks to get situated. All week, we’ve had no Internet. So all week, I’ve been working from home. A sort of working vacation. LOL

I’m thankful for AC and not having to go out in this all week:

Oh and I’m also thankful my LASIK is still strong! Fifteen years post-LASIK and I am *just* now to the point I *may* need glasses. Fifteen years ago, I bought the minimum prescription lenses I could buy so I can drive at night and reduce the halo/starlight effect and also stop the contrast issue I have post-LASIK. I am happy to report that I can *still* uses these glasses. Until my prescription changes enough to warrant a change in lenses, that’s when I will get re-LASIKed. However, I *should* be wearing reading glasses…but that’s expected when you get older. 😛

What are you celebrating this week? 

Thank you to our lovely host, Lexa Cain for taking over and continuing the Celebrate the Small Things blog hop. I would also like to thank her co-hosts, L.G. Keltner @ Writing Off The Edge and Katie @ TheCyborgMom – without them, I’m sure this would be a daunting task!

To be part of this blog hop, all you have to do is put your name on the linky list on Lexa’s Blog, and then post every Friday about something you’re grateful  for that week.  It can be about writing or family or school or general life.  This is the funnest and easiest blog hop ever! (Originated by VikLit)

LadyJai

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