Monthly Archives: July 2015

Pain – #CelebrateTheSmallThings – 31 July 2015

 

Pain.

It affects everyone differently.

For me, it always wears me down, makes me just want to curl up in my bed under the covers, cuddle with my pillows and kitties, and sleep until I don’t hurt anymore. I’ve only had a few bouts of pain that would wake me up in the middle of the night or keep me from sleeping altogether. I guess I’m one of the lucky ones.

Add to the normal stress of being a woman, working full-time, being a Mom and wife, being a caregiver has its own issues. One of my fellow veteran caregivers called it caregiver-itis. That’s when all the stress of doing everything manifests into physical symptoms. I’ve got it. Sure enough. But my doctor has labeled it – Fibromyalgia. And it is rearing its ugly head right about now. Every part of my being is hypersensitive at the moment. I’ve got stress and tension headaches and my neck is killing me. And I’m struggling to even have the energy to type all this. But that’s only the major things. There’s too many other things I could list.

Right now, I believe it has everything to do with my new position at work. I have a deep seeded fear of failing. But with therapy and learning more about myself, I’ve learned how to (hopefully) cope with this. I’ve been working this new position now for a week. I’ve actually started feeling a bit more comfortable in my new position and understanding what it is I am supposed to be doing, that isn’t getting done, and getting people to accept me and the process (which is like trying to get out of quicksand while you’re running) but it will get there. It IS getting there. It’s the first time I’ve felt good about a new job, where I am NOT afraid of failing (as much as I used to anyway). I did have a small slip back into my old ways on Monday, but I’m better now. Much better because I feel like I really am understanding. But because of all the stress, it’s caused all the pain to flare up and I am struggling to even have energy to type all this. I’ve handled this a whole lot better than I ever have. Even WITH the fibro flaring up, it’s something to celebrate.

As for TheHubs, though, he suffers insomnia on top of the pain. I’m sure not sleeping exacerbates the pain. It sure doesn’t help his depression and PTSD. Dealing with all this has left him in a rut. His insomnia has full on raged and I miss my husband. For the last two months he’s been unable to sleep, and when he does it’s more like he passes out from sheer exhaustion.

Most couples don’t think twice about sharing a bed. Heck, they probably take it for granted and maybe even complain about who hogs the covers. In our life, sharing a bed at the same time is something to be treasured. It always goes in cycles and we never know how long it’s going to last. There’s never any way to fix it, either. We just have to ride it out. But, oh, how I miss him.

This round, I think it’s been a couple of months already. He started out with the pain again. And then he had surgery on his nose. He’s a stomach sleeper so staying in the recliner would prevent him from hurting his nose. It’s been about 3 weeks since his surgery and now he’s back to the chronic pain and migraines, again. But last night, when he started falling asleep in his recliner, I got him upstairs and in the bed with me. I love it. When he’s not cycling insomnia, we cuddle for a bit and then roll over to go to sleep. I’m always too hot anymore to snuggle for long. When he is cycling the insomnia, though, he’s asleep in a matter of seconds. But before he takes that plunge, his feet touch mine in our own special snuggling way.

Even if he only slept for 4 hours, he still shared the bed with me. And that’s something to celebrate.

What are you celebrating this week? 

Thank you to our lovely host, Lexa Cain for taking over and continuing the Celebrate the Small Things blog hop. I would also like to thank her co-hosts, L.G. Keltner @ Writing Off The Edge and Katie @ TheCyborgMom – without them, I’m sure this would be a daunting task!

To be part of this blog hop, all you have to do is put your name on the linky list on Lexa’s Blog, and then post every Friday about something you’re grateful  for that week.  It can be about writing or family or school or general life.  This is the funnest and easiest blog hop ever! (Originated by VikLit)

LadyJai

Related Articles you may like:

Sharing Memories – #CelebrateTheSmallThings – 19 June 2015
The Secret to Marriage
You Are Not Alone!

Financials & A New Car – #CelebrateTheSmallThings – 10 July 2015

I don’t know if you are familiar with my Many Hats Series of posts. There is one in particular that I would like to reference, today, because it is the back story of what I am celebrating. If you have the opportunity, please read the Accountant story, so you can get a better understanding of just how elated I am today. How proud I am of both TheHubs and I. Especially TheHubs.

We spent a good 5 years paying down our debt. When we bought our house 4 years ago, our credit score was horrendous. Not sure how we managed a 5% interest rate, but I was thankful for it. Two years ago, we bought a brand new car and our credit score had increased dramatically. Our credit card debt was nearly paid off by then. Of course I was proud of everything we’ve accomplished, the fact that I was able to say no to my husband when it was an absolute must, the fact he didn’t buy stuff anyway. There have been a few slips along the way, but we managed and I made sure I reiterate every time it happens. Sometimes I still have to put it all down on paper to show him exactly how much he’s spent because of his memory issues. But he has made the most progress over these last 5 years and I am so very proud of him. I make sure I tell him.

We’ve been considering getting a new car for a while now. TheHubs didn’t get everything he wanted in the car we got, plus there have been some pretty major issues already with the 2013 model. When we took our car in to the dealer to get some warranty work done two days ago, we wanted to see what was available to us and see how much of a difference it would be to upgrade. When they ran our credit and came back with the report, my knees literally buckled and I had to sit down. I never thought I’d see those numbers associated with our names. Beyond ecstatic. That’s all I could come up with what I was feeling.

The salesman ran the finance numbers and payment options and we decided. Four hours after we dropped off our car at the service department we had a new 2016 model. Near identical to our existing car.

Say goodbye to Double-Oh TARDIS (right) and say hello to Double-Oh TARDIS 2.0 (left)!!!!

Double-Oh TARDIS

What are you celebrating this week? 

Thank you to our lovely host, Lexa Cain for taking over and continuing the Celebrate the Small Things blog hop. I would also like to thank her co-hosts, L.G. Keltner @ Writing Off The Edge and Katie @ TheCyborgMom – without them, I’m sure this would be a daunting task!

To be part of this blog hop, all you have to do is put your name on the linky list on Lexa’s Blog, and then post every Friday about something you’re grateful  for that week.  It can be about writing or family or school or general life.  This is the funnest and easiest blog hop ever! (Originated by VikLit)

LadyJai

Related Articles you may like:
Accountant — The Many Hats Series
Sharing Memories – #CelebrateTheSmallThings – 12 June 2015
The Secret to Marriage

VA Appeal Update #5

I’ve been trying, for two months now, to find the contact information for Secretary Bob McDonald. I’ve had one person offer help with our claim because she had his “cell phone number” and would “gladly help so no one had to go through what they had to deal with.” Yeah, after 3 attempts to contact her different ways with no response, I’ve given up on her.

I sent the second letter to Rep. Ted Yoho on 6 February 2015 and haven’t heard anything back.

On 3/4/2015 I tried sending a letter to the House Committee on Veterans’ Affairs and when I hit the submit button it returns a 404 PAGE NOT FOUND error. I also sent that same letter to the Senate Committee on Veterans’ Affairs and when I hit the submit button on their contact form, I receive “Access Denied.”

Yeah, I’m beginning to think there’s a conspiracy to cover up anything dealing with the VA. So much for their “TRANSPARENCY.” UGH.

Sent them both a tweet about it. No response.

Went to the Senate’s Facebook page but the option to post on their page has been disabled.

Went to the House’s Facebook page and asked about the 404 error there, and tagged the Senate’s account. Now we wait to see if they respond.

Yes, I’m getting very, VERY frustrated.

I went home that night and posted this in my caregiver support forum:

Today was a complete waste of time and effort. So many things I WANT to do but I spent most of it lost in google and government red tape. Someone in another offered to help with our claim issues and never followed through. I also haven’t heard back from my Representative I wrote to a month ago. So I decided to see if I could look up Secretary McDonald’s contact info. No luck there either. Then, I went to the House AND Senate Veterans’ Committees and their contact us form. One gave me a 404 Not Found error. The other, Access Denied. I thought maybe it was just the browser, so I tried another. Nope. Me thinks there is a conspiracy! I tweeted both of them. No response yet. I went to their Facebook pages. The Senate Committee page doesn’t allow posts from followers. But the House one does. I commented about their web page issue and tagged the Senate in that same post. No response yet. So frustrated. I guess we are supposed to be patient and wait, even though we’ve been doing that since 2003. I guess we aren’t meant to be lucky like everyone else. I guess pain and suffering in more ways than just what he’s going through is our lot in life. I should accept this. But I’m not going to stop. I will continue to try to get my heart hurt because that’s what I have to do. If I don’t do it. He will give up. It just reminds me of the story of Job in the bible. There’s always hope. Right?

I received an offer to help from one of the admins who was “connected.” Four emails later, and started feeling a bit better.

But that didn’t last.

I’ve sent the letters to Senator Ted Yoho, the House & Senate Committee several more times since February. I have heard nothing. What else can I do to get this going? I know I’m supposed to “Hurry Up And Wait.” That’s been the military motto my father drilled into my head since I was a baby. You’d think I would understand this by now. Logically knowing this is so very different from actually practicing this.

A few days ago, we did receive a letter from our Regional Office stating:

We have certified your appeal to the Board of Veterans’ Appeals and are transferring your VA records to the Board in Washington, D.C. The Board will notify you when it has received your records.

More Hurry Up And Wait. Let’s see, here’s a brief rundown of our latest claim with the VA:

  • 7/22/2009 – Claim Received
  • 7/29/2010 – Claim Considered
  • 8/2/2010 – Notice of Decision
  • 7/14/2011 – Notice of Disagreement
  • 10/2/2012 – Personal Hearing at the VA Regional Office
  • 1/29/2014 – VA C&P Exam
  • 7/14/2014 – De Novo Review election Received from Appellant
  • 6/22/2015 – Certified the appeal and sending records to the Board of Appeals in DC.

You can see how frustrating waiting can be!

In the mean time, I continue to advocate for him, anyway I can. But I’m running out. If anyone has any more ideas I can try, I am open and willing to listen. Please send them my way. I have finally found Secretary Bob McDonald’s phone number, which I will leave here for anyone else; but I think I might be too chicken to call him. I wouldn’t even know what to say. I write better than I speak.

http://static.c-span.org/assets/swf/CSPANPlayer.1434395986.swf?clipid=4507948

LadyJai

 

 

Related Articles you may like:

Our Story
VA Appeal Update
VA Appeal Update #2
VA Appeal Update #3
VA Appeal Update #4